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Language
English
Description
Based on the incredible true story of the Beam family. When Christy discovers her ten-year-old daughter Anna has a rare, incurable disease, she becomes a ferocious advocate for her daughter's healing as she searches for a solution. After Anna has a freak accident and falls three stories, a miracle unfolds in the wake of her dramatic rescue that leaves medical specialists mystified, her family restored and their community inspired.
"The sweet sincerity...
6) Midnight son
Language
English
Description
Midnight Son is the story of Jacob, a young man confined to a life of isolation, due to a rare skin disorder that prevents him from being exposed to sunlight. His world opens up when he meets Mary, a local bartender, and falls in love. Tragically, Jacob's actions become increasingly bizarre as he struggles to cope with the effects of his worsening condition. Forced by the disease to drink human blood for sustenance, he must control his increasingly...
Author
Language
English
Description
"Pulitzer Prize-winning reporter Amy Dockser Marcus shows what happened when a group of parents joined forces with doctors and researchers to try to save children's lives. Parents whose children had been diagnosed with the rare and fatal genetic condition Niemann-Pick Type C disease recognized there would never be a treatment in time to save their children if things stayed the same, so the parents set up a collaboration with researchers and doctors...